Gretchen Noah, a beloved community figure and advocate for families affected by Smith-Lemli-Opitz syndrome (SLOS), passed away at the age of 55. Her death prompted an outpouring of grief from friends and family, who remembered her for her unwavering commitment to her family and her advocacy work. Her funeral took place on December 31, 2023, at Sts. Anne & Joachim Church in Fargo, North Dakota.
Gretchen’s journey began when she became a mother of five, navigating the challenges and joys of raising young children. She quickly emerged as a central figure in her community, known for her warmth and support. Her life took a decisive turn when her only son, Markie Noah, was diagnosed with SLOS, a rare genetic disorder that can result in developmental delays and physical malformations. This diagnosis motivated Gretchen to advocate not just for Markie, but also for countless others facing similar challenges.
Through her efforts with the Smith-Lemli-Opitz Foundation, she raised awareness about the disorder and provided support to families navigating the complexities of SLOS. Her advocacy work helped to shine a light on the struggles faced by affected families, providing them with resources and community support.
Gretchen’s commitment to her mission was evident in her daily life. Friends recall her multitasking between managing her coffee shop, Noah Coffee Co., and caring for her children, all while maintaining a positive demeanor. Those who knew her often marveled at her ability to balance these responsibilities seamlessly.
At her funeral, the sanctuary was beautifully adorned with Christmas decorations, a fitting tribute to her vibrant spirit. During the service, her sister-in-law, Susan Noah, read from Wisdom 3:1-9, which highlights the belief that “the souls of the righteous are in the hands of God.” The congregation found comfort in these words, reflecting on the impact Gretchen had on their lives.
One of the most poignant moments of the service came when Markie, now a young man, performed “Ave Maria.” This emotional tribute resonated deeply with attendees, who saw it as a symbol of Gretchen’s love and dedication to her son. As they reflected on her life, many felt an overwhelming sense of gratitude for the legacy she leaves behind.
Gretchen Noah’s life was a testament to the power of love and advocacy. Her relentless pursuit of a better life for Markie and others affected by SLOS served as an inspiration to many. Friends and family are left with cherished memories and a profound sense of loss, but they also carry forward her mission of compassion and support for those in need.
In her passing, Gretchen has left behind a community that is more aware, more compassionate, and forever grateful for the light she brought into their lives.